After what has been a very difficult year, all those at Red Court would like to give back to charity as a thanks for all the kindness they’ve received during the pandemic.
Staff at the home have chosen Pitt-Hopkins syndrome as their charity of the year due to a member of the team having a close connection to the condition.
Throughout the remainder of 2021, both residents and staff will be hosting a number of fundraising events to not only raise awareness but also generate much needed funds to provide support for those undergoing a diagnosis.
Six-year-old Dax Johnston has agreed to be Red Court’s mascot and will be attending future events once it is safe and legal to do so.
What is Pitt-Hopkins syndrome?
Pitt-Hopkins syndrome is a very rare genetic syndrome which effects one in 225,000 to 300,000 people. The syndrome causes developmental delays, moderate to severe intellectual disability distinctive facial features and breathing problems. It is thought that there are around 300 confirmed diagnosed cases in the UK with Dax Johnston from Mablethorpe being one of them.
Due to Dax’s condition, he cannot speak, eat or move by himself. He will always require specialist care which includes his educational needs. Dax’s parents Katie Amos and Lee Johnston are very proud of him and work together to ensure he receives the highest quality of care for his future.
Lin Amos, residential manager at Red Court Care Community said:
“We’re proud to be supporting Pitt-Hopkins this year and Dax has agreed to be our home mascot too. This is a charity very close to my heart as Dax is my grandson and I have seen the impact it has had on his life. He is such a fantastic, bubbly little boy and his parents are always willing to talk about his condition.
“With Pitt-Hopkins being so rare, we wanted to raise awareness and help families currently awaiting a diagnosis or even wanting to find out more about it. Knowing we’ve made a difference will be extremely rewarding.”
You can follow Red Court’s fundraising journey by visiting their Facebook page and keeping an eye on our latest blog posts for updates.
For those wishing to donate money please visit Red Court’s Virgin Money Giving page. Alternatively, if you would like to gift any raffle prizes to the home, they are most welcome. Raffles are a great way for local communities to get involved by either buying tickets or kindly donating business vouchers/products. Please contact redcourt@redhomes.com to arrange a delivery slot.
